Thursday, May 22, 2008

beating the drum

I know that I beat the ACTH drum loud & often. But the fact is...ACTH is day by day proving to be our miracle drug. Trevor's seizures have now been in remission for FIVE MONTHS! He is by no means *out of the woods* - as his continued abnormal brain waves reveal. And every day the back of my mind wriggles reminding me that the relapse rate is 50%. And that Trevor's risk is higher based on his subclinical activity. And I also know that ACTH fails 50% of the time. I have friends who have gain

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